The Experience of Caregivers in Accessing Oral Health Care Facilities for Cerebral Palsy Children: A Qualitative Study

Datu Mohd Amyril AbduludinPH, Normastura Abdul Rahman, MComMed, Munirah Mohd Adnan, Azlina Yusuf: The Experience of Caregivers in Accessing Oral Health Care Facilities for Cerebral Palsy Children: A Qualitative Study. 2019, (Type: ORAL PRESENTATION; Organisation: School of Dental Sciences, Universiti Sains Malaysia, Kubang Kerian, Malaysia).

Abstract

INTRODUCTION: Maintaining oral health (OH) is a major issue among children with cerebral palsy (CP) due to varies factor and one of it having barriers in accessing OH services. This study explored the experience of the caregivers on accessibility towards OH services for their children with cerebral palsy (CP) in Kota Bharu, Kelantan. METHODS: A purposive sampling was utilised, audio-recorded in-depth interview conducted on ten CP’s caregivers in this qualitative phenomenology study. Transcribe verbatim were reviewed, NVivo used in developing themes and facilitate data management. RESULTS: Ten CP’s caregivers aged 32-60 years participated, mostly from low socio-economic status, low level of education and the children with CP predominantly in Gross Motor Function Classification System IV. From ten verbatim transcripts, five themes have emerged; dental experience (unable to identify and express dental problem), family support (sole primary caregiver, poor relationship among family), mobility (lack of transportation, facility not disable friendly), ability to pay (financial constraints) and social value (stigma, marginalised by surrounding). DISCUSSION: OH literacy, appropriate OH services, OH outreach programme and future OH home services, suggesting promoting the ability in accessing OH facility. Highly dependent children with CP needs physical support however unsupportive interactions amongst family jeopardized their dental needs. Social support will assist CP’s caregiver in parenting duty however poor social support, restriction on mobility and costly basic necessities could detrimental their OH need. Therefore, attentions are needed to address related barrier factors that are impeding access of CP children to OH facilities.

    BibTeX (Download)

    @proceedings{APCPH-2019-90,
    title = {The Experience of Caregivers in Accessing Oral Health Care Facilities for Cerebral Palsy Children: A Qualitative Study},
    author = {Datu Mohd Amyril AbduludinPH and Normastura Abdul Rahman and MComMed and Munirah Mohd Adnan and Azlina Yusuf},
    year  = {2019},
    date = {2019-07-22},
    urldate = {2019-07-22},
    journal = {6th Asia-Pacific Conference on Public Health 2019 Proceedings},
    issue = {6},
    abstract = {INTRODUCTION: Maintaining oral health (OH) is a major issue among children with cerebral palsy (CP) due to varies factor and one of it having barriers in accessing OH services. This study explored the experience of the caregivers on accessibility towards OH services for their children with cerebral palsy (CP) in Kota Bharu, Kelantan. METHODS: A purposive sampling was utilised, audio-recorded in-depth interview conducted on ten CP’s caregivers in this qualitative phenomenology study. Transcribe verbatim were reviewed, NVivo used in developing themes and facilitate data management. RESULTS: Ten CP’s caregivers aged 32-60 years participated, mostly from low socio-economic status, low level of education and the children with CP predominantly in Gross Motor Function Classification System IV. From ten verbatim transcripts, five themes have emerged; dental experience (unable to identify and express dental problem), family support (sole primary caregiver, poor relationship among family), mobility (lack of transportation, facility not disable friendly), ability to pay (financial constraints) and social value (stigma, marginalised by surrounding). DISCUSSION: OH literacy, appropriate OH services, OH outreach programme and future OH home services, suggesting promoting the ability in accessing OH facility. Highly dependent children with CP needs physical support however unsupportive interactions amongst family jeopardized their dental needs. Social support will assist CP’s caregiver in parenting duty however poor social support, restriction on mobility and costly basic necessities could detrimental their OH need. Therefore, attentions are needed to address related barrier factors that are impeding access of CP children to OH facilities.},
    note = {Type: ORAL PRESENTATION; Organisation: School of Dental Sciences, Universiti Sains Malaysia, Kubang Kerian, Malaysia},
    keywords = {cerebral palsy, oral health service accessibility, qualitative research},
    pubstate = {published},
    tppubtype = {proceedings}
    }